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STEVE AND SUSAN'S BLOG

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We have never run out!

Saturday, March 6, 2010

Although sometimes it seems that everyone here in our villages is HIV positive, it's not always the case of course.  But the truth is that the vast majority of the very sick who my students and I visit do indeed have AIDS.  And so it almost catches us off guard if someone who is very sick turns out to not be HIV positive!  My friend Mzee Filipatale is one of those folks.  Two years ago, he showed up at my door to show me a bullet-size hole in his shinHe had used all of his money over the course of half a year, selling just about everything he had, trying to get this wound to heal.   And finally he came to our house saying that he didn't know what to do anymore.  And so for the last nearly 24 months, we have sent him to various hospitals in search of someone who could cure him, always without success.  For months now we have been going, or we have been sending someone to go to his house every day to change his dressings.  Dear, sweet, very old man.  In December while I was in America he had a skin graft done by a European doctor who used Godfrey's living room as a makeshift hospital.  And then Godfrey and his wife had Mzee Filipatale stay in their home for three days as he recovered.  When I got that news in America I couldn't wait to get back to see my friend and his skin graft!  I was full of hope that by the time I got home from America that it would all be healed.  My joy just turned to utter grief when I was told that the skin patch had fallen off a few days after it had been set.  When I went that day to his house, the wound had doubled in width and doubled in depth.  As I unwound his bandage, the smell of decaying, putrid flesh slammed me in the stomach.  After three months in the States, the realities of life here had caught me off guard.  But since that day we have been back to tending his wounds, and the wounds of our other friends.  We still don’t have an answer for Mzee Filipatale and perhaps we never will.  But I'm not responsible for finding an answer to his suffering, but I am responsible for showing him love and concern and for caring for him -- and that is what I want him his family and his neighbors and my students to see.

Hideous wounds are even more commonly found in my HIV+ friends.  The key to living a good life with AIDS is getting tested early, following the rules, and taking the medicine faithfully.  If people mess up at any point, the consequences are grave.  One of the nastiest of consequences is Kaposi Sarcoma, a skin cancer that affects so many of our friends here. The black spots on the skin initially look benign.  Eventually those spots take on different forms: some of them just look like large black spots, other spots turn into holes, other manifestations are the grotesque swelling of hands or feet that eventually fester and open up into crater type wounds. Slowly but surely Kaposi Sarcoma takes over the person’s body.  But if we catch it early enough, even this horrible cancer is so very treatable, and that's why I impress upon my students that it's so important to be out visiting people in their homes and to be on the watch for it.  The people in these villages don't know what it is, and even if they did know, they wouldn't know where to go until it would be too late.  One of our friends who is so blessed is 25 year old Skola.  Her mother accompanied her here to my house the moment she learned that her daughter had AIDS and Kaposi Sarcoma.  We were so thankful that we were able to get her documents signed quickly with a medical referral so she could get into the cancer treatment program at the Muhimbili Cancer Center in Dar es Salaam We helped her make three or four trips all the way to Dar, and now the black spots have healed and she has her old bouncy personality back.  She is even learning how to sew!   But others of my friends aren't so fortunate.  Jeska is one of those.  She is only 19 years old.  Last year, her hand was swollen as though someone had pumped up her hand with air to four times the normal size leaving her incapacitated.  Now it is moving into her feet, swelling them up and splitting them open, leaving huge infected wounds.  And with all of this, fungus takes over between the swollen infected toes.   Even her legs are starting to get holes.  We are so blessed though that Dr. Leena comes every few weeks, leaving all of her work at the hospital, to come spend a few days traveling around with me to visit those people who would never get to a hospital.  How wonderful to have a dear doctor, a real missionary, who will give of herself to travel around with me and make so many "house calls", to advise us on how to better care for our friends who have no where to go and who would be totally without help.  Jeska is on the ARVsbut although I want to hope that it is not so, often I fear that she got on the drugs way too late.  AIDS doesn't actually kill a person -- but it opens the door to so many infections and cancers that left unchecked the body is simply overwhelmed and overpowered.  Young, lovely Jeska -- my friend -- a dear, young woman, who never learned to read or write, who doesn't know what a virus is, she probably has only has a few months left.  What she knows though is that we will not leave her.  We'll do everything to keep her as comfortable as possible. 

I wish I could tell all of you who help us with your prayers and who give so generously month after month that every story here "had a happy ending", that all of my friends lived, that we had figured out a way to keep every last one of the babies from getting HIV, that we got to everyone in time, that everyone healed up and got stronger, that all of my friends found peace with God, that no one was hungry anymore, that everyone's wounds were healed.  It isn't that way.  But still I thank you for helping make it possible for us to comfort those who are dying, to ease their pain, to show them love right up to the end and to help them, even to be able to do the little things like keep them warm in this bitter cold here.  I thank you too for the medicines that enable us to help so many.  I thank you that we have our busses and that those who would never dream of having enough money to ride on a bus can ride freely to that hospital where they get he medicines that enable many of them to live.  Do you know how wonderful it is to have baby formula so that there is hope that we can keep some of the babies from getting HIV from their mothers?  How different things are from a few years ago when the situation seemed to everyone to be so lacking in hope.  What God has done through all of this is to create a true feeling of hope.  And more and more people are coming to see that it has to be God who has done this.  And what I know is that it is God who has done this through you, my friends and my family.  Those of you who prayed that God would send us a doctor -- well God sent Dr. Leena who is far beyond any normal doctor.  Those of you who prayed that we'd be able to somehow get my friends to the hospital -- well God sent us not just one bus, but two busses.  Those of you who prayed that God would give strength when we are weary -- well God has turned us into a team of people here, my dear Sarah, wonderful Veronica, my many students -- so that as huge as the burden grows, He makes the burden light by giving us many hands and hearts and feet to help bear it together.  And to those of you who give of your treasure, my cabinet overflows with medicines, we have blankets, mattresses, there is always diesel fuel for the busses, New Testaments to share, food for the desperately hungry.  Since we have begun, we have never run out.  Can you believe that?  We have never run out!  How wonderful.  May God bless all of you for all of this.  I do thank you.

In His service,

Susan 

 



Mama wa Wengi

Monday, March 1, 2010

They've started calling Susan a new name, Mama wa Wengi (the mother of many).  I came across a note Susan had written about three of the little kids who are part of her life at Madisi, and thought I would share it with you all so you can get a glimpse of why ...

 

Little Abdoni’s angry cry could be heard 10 minutes before he ever showed up at my door.  As the howling approached, we wondered what was yet in store for us that morningAbdoni was indeed one angry boy -- which is a good sign for a baby who we learned from his mom had lost almost half of his body weight in the past 2 weeks.  What we've discovered in this war we're in is that babies born to moms with HIV/AIDS and who contracted the disease at birth are very difficult to help.  HIV testing for infants has yet to make it to our little part of the world, and so it has been a kind of a hit or miss approach with the hospital to get these babies on on the ARVs before they die.  Last year, we lost 12 babies but we're already two months into this new year and we haven’t lost one yet.

 

Little Abdoni’s angry brown eyes dared me to do something.  His mom said he had diarrhea and had been vomiting.  What that meant was that if he could, or would, drink the oral rehydration fluid, he might have a chance.  And so there it was on my porch after a few painful sips that emaciated Abdoni decided that, even he didn’t like me one bit, he sure did like the orange flavored drink!  He finished a half a liter in no time and kept it down.  In the meantime, I sent text messages to Dr. Leena at Ilembula hospital to ask what to give this dying baby, and I prayed.  And wonderfully the Lord provided everything that we needed.  The text messages went through right away from my village to her village, something that only happens on "good days", and each medicine she told me to use we actually had in stock there in my little pharmacy.  Godfrey & Emmanueli had just replenished me with another big supply of medicines on their way back from their trip to Rukwa and Mbeya and I lacked for nothing!  A few days later, I picked Abdoni up at his home and took him to as special baby clinic Dr. Leena was doing in the village of Mdabulo, and as she and the clinical officer looked him over, they agreed that as soon as the next batch of ARVs come in March that little Abdoni gets to get enrolled in the program with or without the lab tests!  How blessed we are.  In the meantime while we're waiting for the ARVs he'll be on co-trimoxozale to sustain him.  Given the very large number of HIVpeople, there is a painful lack of co-trimoxozale -- a drug that wonderfully helps fight off the so-called "opportunistic" infections which are often responsible for our friends’ deaths.  But they've got enough on hand for Abdoni and for that I am very grateful.

 

Unlike little Abdoni, we have 2-year old Benedict who got on the ARVs at 9 months of age in what I can only a miracle from the Lord.  His beautiful Mom so desperately didn't want to lose her only son.  Unlike Abdoni who was totally emaciated, Benedict when I first saw him was totally swollen with fluid to the point where his skin was all splitting open.  But just like Abdoni, Benedict's eyes said that he wasn't going without a fight.  And as I think of Abdoni, I see again that it was the kindness of Dr. Leena that God used to save a life.  She had been given cans of special, lactose-free milk from Finland, and she had shared with me part of what she had been given so that I had them in my car "in case I ever needed them".  Some kids with Kwashiorkor can’t handle milk or formula once they have become lactose intolerant and to save them we need something special that isn't found any where in this country -- and I remember the joy of knowing that what was simply not available to purchase no matter how much money I would have been willing to pay to get it, there it was in the back of my car -- cans of lactose-free milk from Finland that someone had sent to Dr. Leena.  I see him now and am thankful for how strong little Benedict seems to be getting.  His family sure has been hit hard by AIDS.   Four of the five family members have the virus.  I marvel at the women with such courage and love as Benedict’s mother who refuse to give up in spite of her nearly unbearable circumstances.  I’m not sure what I would do if I were in similar circumstances.

 

Five year old Amani came into my life last summer.  His grandmother had asked me if she could take our bus and go to Mafinga town to find Amani as he was sick. I learned that Amani’s baby sibling had just died and his mom was sick and his grandmother had purposed in her heart that she just wanted to go get her grandson.   Our bus exists to transport those who are sick and need to get to the hospital, but I had Abeli add her to the list to go into town and then to add her and her grandson to come back.  As soon as Amani got here to the village we sent him to the hospital for HIV testing and sure enough he tested positive.  We tried to find his mom, but I didn't get to talk to her before I left to take Jonathan to America for his surgery in October.  I learned when I got back to Tanzania in mid-January that she wouldn't go get tested.  I found her a skeleton with eyes just too tired to care anymore.  We cared for her the best we could, bringing food, doctors, medicine, blankets and anything else that would give her a boost until she could start the ARV’s.  The last afternoon I saw her alive I brought her a beautiful knitted blue hat that a friend of mine had made in America and I helped her put it on to keep her head warm in the terribly cold night.  As the extended family members gathered around the house I knew that they knew that the end was coming soon.  They could see death in her unfocused eyes and hear it by the rattle in her chest.  When I returned the same time the next afternoon, Amani was wearing that beautiful blue hat, standing beside the bed where his mother had died.  His mother was only 25 years old.  Her young life started to end when she got married to Amani’s father.  He gave her the virus, though neither of them knew that at the time, and she then passed the virus on to Amani, most likely through nursing him.  After Amani's father died, she re-married but the pregnancy and then the birth of a new baby caused this immune-compromised woman to go down hill fast.  In the last year, she lost her new baby, then she lost her second husband, and it was obvious her whole family had been infected.  And it was then that her mother went to town to bring her home to the village, to try to care for her and for little Amani.  Five years old this dear little boy.  Wearing his mother's beautiful blue hat.

 

Last week we had 26 Finnish missionaries in our home for a special Sunday afternoon worship service and as we shared with them about the work that God has brought us to do in these villages.  We talked of starting schools.  We talked of sharing the Gospel.  We talked of leadership.  But we also talked of the wonderfully good things that their dear Finnish colleague, Dr. Leena, and Susan, and Sarah, and Veronica and so many of our students are out there doing day after day to help the children who without a doubt Jesus would call "the least of these my brothers".  I wish all of these kids would grow up, that somehow Susan and her little team could save them all, that they'd all get to go to school one day, that down the road someone somewhere would find a cure in time for these kids.  I found another one of Susan's notes, a reminder for me of just how painful this life is that she has chosen to lead.

 

It was 12:45 p.m. and the text message from the Kibao clinic read, “Sorry to inform you that the child called Anet Makombe just passed away.”  Anet was just 14 months old and she and her mother first came to me last week.  Her little body was swollen with fluid and the fluid was bursting through her skin.  She was breathing quickly and she looked near death.  I got her the needed medicine, the right kind of nourishment and we made all of the arrangements for Abeli to take her on the bus to my wonderful friends at Kibao clinic.  She was too far gone that little girl, and four days later, today, she died and the sisters sent me the text message from the clinic.  I called Abeli and asked him to buy a mat and a cloth to wrap baby Anet in for the trip back home to the village to be buried. 

 

Soon after I talked with Abeli a huge storm passed through our area, leaving those of us who were out on in vehicles to slip and slide off into ditches.  I was far from home making my rounds visiting people and my little vehicle Panzi (Grasshopper) managed some very steep mountains sliding down sideways.  If we were going to slide off I kept telling myself at least I was planning to go off very slowly!  But we made it back to the village safe and sound and that is where I met up with Janerose who let me know that Abeli and the bus was stuck on that same mountain that I had slid down.  And yes, he was stuck there with Anet's mother and little Anet wrapped up in a mat coming home to get buried.  I sent word to her family in the village of Ikaning'ombe to have them send someone on foot to get them because I couldn't bear the thought of that mother spending the night on the bus with her dead child at her side.  Not long after though I heard our car Yatima leaving.  I learned that it was Emmanueli who was at the wheel.  He didn't come home for several hours.  He had made it to where the bus was stuck, he retrieved Anet's mother from the bus and drove her to her to home in the village.  I would have never dreamed on such a stormy night of asking Emmanueli to do that.  I didn't have to.

 

No none of us would have ever dreamed of asking Emmanueli to take the car out that night on those terribly muddy roads.  The beauty of what is happening here in that no one would ever have to ask him to do it.



Latest Updates


Archives

Archives (PDF format)

2008 Letters from Steve and Susan
04/25/2008:  Just Perfect
04/24/2008:  You can't eat stones
04/17/2008:  The happiness in the Sound of Jonathan's Voice'
04/16/2008:  Many Thanks from all of us
04/15/2008:  April 15th
03/29/2008:  As I Stood there in the Drizzle
03/28/2008:  The Queen of Mbinga
03/16/2008:  Details are Still Sketchy
02/19/2008:  69 New Teachers
02/12/2008:  On February 11th, VSI opened its 11th school in Tanzania
02/07/2008:  A New Day is Dawning
02/02/2008:  On January 30th yet another school was born
01/30/2008:  Our ninth school in Tanzania
01/27/2008:  The meaning of seven verses
01/21/2008:  Huruma's name is particularly fitting
01/20/2008:  James
01/13/2008:  A bit too improbable

2007 Letters from Steve and Susan
12/18/2007:  Some old pictures
12/02/2007:  We must be clever
11/30/2007:  In more ways than one
11/23/2007:  I felt like this was the Thanksgiving that passed me by.
11/12/2007:  I missed out on more than goat meat.
10/18/2007:  Pictures of the roof of our new dorm for girlss
10/17/2007: The results are even better than all the rumors.
10/15/2007:  No way we can explain away what has happened.
10/13/2007:  Attending their children's graduation.              
10/09/2007:  What was my strategic plan for the future of schools in Malawi?
09/29/2007:  I hope so
09/28/2007:  This awesome priviledge ...
09/27/2007:  The best underdog story I've ever lived
09/13/2007:  What in the world Jonathan was up to!
09/09/2007:  Pictures of the beginnings of the first Girls Dorm at Madisi
09/06/2007:  The willingness to fail
09/04/2007:  Using a capital or a small letter h
08/21/2007:  No offense to you Steve ...
08/17/2007:  No surgery needed for Jonathan!
08/16/2007:  Update on Jonathan
08/15/2007:  Two needs
07/26/2007:  Jonathan's check-up
07/20/2007:  Looking beyond the next 30 days
07/17/2007:  Makuzani was a concept
07/14/2007:  The girl who remembered
07/05/2007:  He just can't stop smiling
07/04/2007:  I knew what he was saying when he said that
07/01/2007:  Many children will surely tell their story different than mine
06/27/2007:  Fantastic news
06/26/2007:  Images of my grandfather
06/24/2007:  Thoughts from both of us
06/21/2007:  Teetering on the brink
06/15/2007:  We got it, we got it, WE GOT IT!
06/14/2007:  Rachel, Hawa and their sodas
06/14/2007:  Sawala
06/13/2007:  Nothing new under the sun
06/06/2007:  One last load
06/04/2007:  Janelle didn't have a degree in theology
05/22/2007:  Disappointing news
05/20/2007:  Tamara and Maggie's long journey to Lugoda
05/18/2007:  "The bestest luck ever"
05/14/2007:  We've got a problem
05/09/2007:  What it's like living in the village
05/05/2007:  I, like you, just got Susan's email in my in-box
05/05/2007:  "What will happen to them if I die?"
04/21/2007:  I will miss him
04/17/2007:  32 to be exact
04/14/2007:  The only Monica I knew
04/13/2007:  Three special families
04/09/2007:  In awe at their generosity
04/05/2007:  Jonathan's heart
03/29/2007:  We win again! Wow!
03/27/2007:  Nicolas
03/22/2007:  The signature
03/19/2007:  Textbooks
03/14/2007:  Would you please do me a big favor this week?
03/08/2007:  It's time to kill all of our goats ...
03/07/2007:  Our new website
03/06/2007:  And some of them are going to be just like Godfrey ...
03/04/2007:  A priest, a grandfather, and an agricultural extension officer ...
02/26/2007:  Sharing her secret
02/26/2007:  The lifting of the fog...
02/01/2007:  Roina's mother
01/30/2007:  Mama Kambanyama's 473 kids
01/20/2007:  Chuckling with a sense of excitement
01/20/2007:  Now I have my team ...
01/14/2007:  Joyce
01/03/2007:  He said he just couldn't.
01/03/2007:  I didn't want to be the last one.

2006 Letters from Steve and Susan
12/22/2007:  Letting go of John
12/17/2007:  Rain and Mud and 270 kids!
12/15/2006:  One of mine was chosen!
12/10/2006:  Sometimes the best food doesn't come served on the nicest plates ...
11/29/2006:  "My little brother is in the fifth grade"
11/28/2006:  Kids in a Candy Shop!!!
11/26/2006:  The meshing of our lives ...
11/21/2006:  Thanksgiving
11/04/2006:  Glimpses of VSI in Tanzania
10/31/2006:  "I know now what I want to tell them when they come"
10/26/2006:  Julius and Netho
10/20/2006:  Where could they have taken Luti to?
10/17/2006:  Saida's Grandmother
10/15/2006:  Eliza's Momma
10/09/2006:  Mwanume in Kising'a
09/30/2006:  Luti
09/30/2006:  Saying goodbye to Baba Hezroni
09/27/2006:  Hezironi's Dad
09/25/2006:  The "poor"
09/22/2006:  For such a time as this ...
09/18/2006:  Upendo
09/17/2006:  Might as well be REALLY late...
09/16/2006:  8 Days from Now
09/15/2006:  Urbana
09/08/2006:  Sifa and Lucia
09/06/2006:  Off to the Heart Hospital!
09/05/2006:  Struggling
09/05/2006:  Peas from Anastasia
09/01/2006:  A wonderful morning!
08/12/2006:  The stars are shining brightly in Igoda tonight ...
08/10/2006:  Excellent news!
08/09/2006:  Susan's note ...
08/02/2006:  We can not close our eyes
07/25/2006:  I had been wrong
07/20/2006:  Bouncing off the wall!
07/18/2006:  Take a guess where I am!
07/15/2006:  Ziada
07/12/2006:  Off to Parliament ...
07/05/2006:  What a woman!
07/04/2006:  Grace
07/04/2006:  Eleven months ago I didn't know even one of their names
06/19/2006:  Yea!
06/19/2006:  July 25th
06/19/2006:  Just let me do this ...
06/14/2006:  Not all of life is just work, work, work ...
06/05/2006:  Wow!
06/03/2006:  I hate wearing ties!
06/03/2006:  Forms
06/03/2006:  The opportunity presented itself
05/27/2006:  Lucky me!
05/23/2006:  Sweet Icing
05/20/2006:  A real reason to smile!
05/18/2006:  Up to our Eyeballs in Mud
05/18/2006:  Susan the Queen!
05/10/2006:  A need we have ...
05/04/2006:  So we're all happy
04/28/2006:  The right color ...
04/25/2006:  A nice email
04/18/2006:  Names
04/18/2006:  Glimpses of my travels ...
04/01/2006:  Heziloni's great day!
03/31/2006:  Heroes and more heroes
03/29/2006:  From Godfrey Hiari
03/29/2006:  Good things
03/24/2006:  A hero in Kising'a
03/20/2006:  A gift from Esther
03/20/2006:  Falling asleep when you're not supposed to ...
03/20/2006:  One more reason ...
03/11/2006:  Good bye!
02/24/2006:  Godfrey's great and wonderful day (and mine too!)
02/13/2006:  Jonathan's check-up
02/13/2006:  No need for those parallel bars!!!
02/08/2006:  0ff to America!!!
02/08/2006:  The timing of things ...
02/07/2006:  Only 51 to go ...
02/03/2006:  Emmanueli's Turn
02/02/2006:  The joys of going home ...
01/29/2006:  Five and half years later ...
01/26/2006:  The gift of anther goat ...
01/21/2006:  Great News!!!
01/21/2006:  Old Enough to Travel
01/18/2006:  Josh and Jonathan's Goat
01/14/2006:  A Start
01/07/2006:  Hope
01/04/2006:  The Best Part

2005 Letters from Steve and Susan
12/17/2005:  Trading Dollars for Shillings
12/12/2005:  Great News from Kising'a
12/06/2005:  December 12
11/29/2005:  First Steps & First Smiles
11/09/2005:  The rest of the story ...
11/08/2005:  Victory!
11/08/2005:  Phone calls in the night ...
10/31/2005:  Electricity!
10/17/2005:  October 27th
10/15/2005:  Doto
10/04/2005:  Update from Sawala
09/26/2005:  Teachers Training College
09/19/2005:  Matthew 5:14-16
09/19/2005:  3 A.M.
09/10/2005:  A lifeboat in an ocean
09/02/2005:  Eliza
08/11/2005:  260,307 Tanzania Shillings
08/09/2005:  Great news!
08/06/2005:  Rwanda Prayer Team
08/05/2005:  A Gift of Stones
08/04/2005:  Great news from Kising'a
07/30/2005:  Thanks!
07/30/2005:  July 28th
07/26/2005:  They're here!!!
07/24/2005:  Back from Rwanda
07/22/2005:  Rwanda
07/18/2005:  Wilfred's email
07/14/2005:  The best house we've ever lived in
07/06/2005:  Great things happening in America too!
06/26/2005:  32 days!!!!
06/07/2005:  Great news!
05/30/2005:  Messages from Tanzania
05/27/2005:  He is at work through people

April 5 - May 18, 2005 Steve's second trip to Tanzania
05/18/2005:  Almost home!
05/17/2005:  Susan's okay and all's well
05/15/2005:  In that brief moment
05/14/2005:  Tomorrow
05/10/2005:  Pictures from Tanzania May 10, 2005
05/03/2005:  Do I have doubts?
05/03/2005:  Pictures from Tanzania May 3, 2005
04/30/2005:  I took a deep breath and decided to tell him
04/26/2005:  The birth of a second school
04/26/2005:  Pictures from Tanzania April 26, 2005
04/22/2005:  It doesn't mean that someone becomes Santa Claus
04/19/2005:  Pictures from Tanzania April 19, 2005
04/16/2005:  Doing something that a teacher probably should never do
04/09/2005:  Can't wait for Monday!
04/06/2005:  I'm bound for Igoda!
03/17/2005:  He took the time to write to our son
03/12/2005:  When I did a rather crazy thing
03/04/2005:  Only 40 days left

January 6 - February 18, 2005 Steve's first trip to Tanzania
02/17/2005:  I could not have said it better myself
02/17/2005:  Pictures from Tanzania February 17, 2005
02/11/2005:  That beehive of activity
02/08/2005:  Pictures from Tanzania February 8, 2005
02/04/2005:  And that one little sentence
02/01/2005:  Pictures from Tanzania February 1, 2005
01/31/2005:  But I am a very fortunate teacher
01/25/2005:  Pictures from Tanzania January 25, 2005
01/21/2005:  A second chance is now theirs
01/17/2005:  I will never forget yesterday.
01/15/2005:  Now I see daylight

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